IN TOUCH VOLUNTEER PROGRAM
If porphyria has touched your life and you’d like to share with others who have also been touched by the disease, we’d love to hear from you! The two main qualifications you’ll need are generosity of spirit, and a compassionate heart. There are two types of APF In Touch volunteers:
- In Touch/Area volunteer agrees to be available by phone or e-mail to others who are looking for friendship and support, and who wish to network with individuals in their own town or region.
- In Touch/Porphyria Type volunteer is a member who makes her or himself available to others with the same type of porphyria, regardless of location.
In Touch Volunteers are very important. Because porphyria is so rare, the In Touch network provides many porphyria patients with their first opportunity to speak with another person who has the disease — this is a key reason many of our members join the APF. In Touch Volunteers can expect tremendous gratitude, while finding the chance to build new and lasting friendships.
TRADESHOW/CONFERENCE EXHIBIT VOLUNTEER
Help educate doctors about proper diagnostic testing and treatment by staffing the APF exhibit booth when medical conferences are held in your area. Greet conference attendees as they pass by, offer APF brochures and resources as a way of promoting awareness about porphyria in the medical community. Medical organizations hold their conferences in different parts of the country each year, so if you live in or near a major city there’s a good chance you’ll be able to help out at a conference! Please contact the APF office for more information.
You can also host a table or speak at your local hospital to educate physicians on Porphyria. Many facilities offer a “lunch and learn” program. The APF will train you so you are prepared for any situation.
LOCAL PUBLICITY VOLUNTEER
Raise awareness! Local volunteers can be very effective in arranging articles and television segments about porphyria in the media in their area. Call us at the office to find out more. We will offer tips to get the most out of a media opportunity. Please see our comprehensive list of media that the APF has been involved in.