FOR SUPPORT, CALL 1-866-APF-3635 (273-3635)
Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.
Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience
We aim to protect the health and well-being of all patients and members.
This critical OpEd was published today about access to Panhematin.
Last night, July 10th, the APF hosted a Patient Education and Support Meeting in New York City at Mt. Sinai
Have you had problems or difficulties accessing Panhematin in a hospital setting
