A research company has initiated an online survey to get a deeper understanding of patients’ experiences living with acute porphyria. The study can be taken on a laptop or desktop computer and will take approximately 30 minutes to complete. Participants will be screened to ensure they meet the criteria listed below.
Participants will receive a $50 stipend!
- Are 18 years of age or older
- Have been diagnosed with Acute Hepatic Porphyria (specific types include Acute Intermittent Porphyria, Variegate Porphyria, Hereditary Coproporphyria).
- Own and are comfortable using a laptop or a desktop computer
- Have internet access
Please call the APF at 866-APF-3635 to participate in the survey.