The new report on pain management, mandated by Congress, is an important milestone for all our porphyria warriors. The report emphasizes the need for affordable, multidisciplinary care instead of a one-size-fits-all mindset. This is a need that many porphyria patients can relate to.
Use your voice and join the US Pain Foundation by taking part in two easy-to-use action campaigns:
- A campaign for making a phone call to legislators on the two key committees. We have talking points and direct numbers. You'll likely just speak to an aide, and that's fine. They'll report comments to your legislator.
- A campaign to email all members of Congress. This is a general form letter that can be sent by anyone.