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Clinuvel Announcement

CLINUVEL INITIATES Variegate Porphyria PROOF OF CONCEPT STUDY

Today CLINUVEL announced it has initiated a new clinical trial in Variegate Porphyria (VP), set to commence in Europe in 2019.

Click on the link below to view the announcement.

Announcement

 

RSVP TODAY!

Patient Education and Support Meetings coming your way. Contact the APF today to RSVP! We look forward to seeing you there.

Patient Education and Support Meeting - Missouri

LOCATION:
Mound Ridge Retreat and Mission Center | 31 Agape Lane | Cook Station, MO 65449

DATE AND TIME:
10/27/18 12:00pm - 10/27/18 2:00pm

Question and Answer session by Porphyria Expert via Skype. Family and Friends are welcome to attend. Lunch will be provided.

RSVP by phone at 1.866.APF.3635 or by email at edrinw@porphyriafoundation.org

 

Patient Education and Support Meeting - San Francisco

LOCATION:
UCSF Medical Center | 505 Parnassus Ave.| Room: S-157| San Francisco, CA 94143

DATE AND TIME:
11/11/18 5:30pm - 11/11/18 7:00pm

Question and Answer session by Dr. Bruce Wang. Seating is limited. Please RSVP Today!!
By phone at 1.866.APF.3635 or by email at edrinw@porphyriafoundation.org