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Have you joined our Facebook groups?

Did you know APF has 8 Facebook groups?? We have one open group along with 7 closed groups that you can request to join by clicking the JOIN button at the top of your screen. Our groups are very active and are a great way to connect with other Porphyria patients and caregivers to share support. As an ultra-rare condition it can seem like you are alone but YOU ARE NOT!

  • APF: PORPHYRIA - AIP, HCP, VP.
  • APF: PORPHYRIA - EPP
  • PORPHYRIA - EPP for Young People 26º Below
  • APF: PORPHYRIA - PCT
  • APF: Porphyria - CEP
  • Porphyria~ International Porphyria Foundation
  • Porphyria Research