Do you have AIP, VP or HCP? Are you interested in participating in research? If so, we are recruiting volunteers for the Panhematin Study.
Our researchers need people to volunteer for the Panhematin study. Completing this study will help prevent insurance companies from not paying for this treatment.
The purpose of this study is to determine if Panhematin is safe and effective for prevention of acute attacks of porphyria.
- Can you predict when your next attack will happen?
- Are you currently receiving prophylactic heme treatment?
Please contact Edrin at the APF office (301.347.7166) if you are interested in participating.