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Porphyria Experts

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The APF maintains a list of Porphyria Experts, who are either experts or who are training with a Porphyria Expert in the Protect the Future program to train future experts.  The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.  Please note that the list is updated frequently, so check it often or contact the APF for additional physicians. 

To use the list, first locate a city nearest you.   For the doctor's name and contact information in your area, call the APF Toll Free: 1.866.APF.3635.

The APF also maintains a database of physicians across the United States and globally that are familiar with Porphyria, though we are not able to validate their level of experience.  Please contact the APF for a physician in your area.

 


* Each city listed will display the number of Porphyria Experts and the number of physicians that have trained with a porphyria expert and is in the PTF program.

ALABAMA

Birmingham,  AL  35294
   1  Expert
   2  PTF Physicians

Montgomery,  AL 36106
   1 Expert

ARIZONA

Phoenix,  AZ  85003
   1 PTF Physician

CALIFORNIA

San Francisco, CA  94143
   2 Experts
   2 PTF Physicians

Los Angeles, CA  90095
   1 PTF Physician

FLORIDA

Miami, FL  33136
   1 PTF Physician

ILLINOIS

Chicago, IL  60612
   2 PTF Physicians

KENTUCKY

Lexington,  KY  40536
   1 Expert

MASSACHUSETTS

Boston,  MA  02115
   1 PTF Physician

MISSOURI

Kansas City, MO  64131
   1 PTF Physician

NEW YORK

Buffalo,  NY  14263
   1 PTF Physician

New York, NY 10029
   2 Experts
   2 PTF Physicians

NORTH CAROLINA

Huntersville,  NC 28078
   1 PTF Physician

Matthews,  NC 28105
   1 PTF Physician

Winston - Salem,  NC 27157
   1 Expert

NORTH DAKOTA

Fargo, ND  58102
   1 PTF Physician

OHIO

Independence OH 44131
   1 PTF Physician
 

PENNSYLVANIA

Philadelphia,  PA  19107
   1 Expert

Pittsburgh,  PA 15213
   1 PTF Physician

TEXAS

Galveston, TX  77555-1109
   1 Expert
   4 PTF Physicians

Houston, TX  77030
   2 PTF Physicians

UTAH

Salt Lake City,  UT  84132
   1 Expert
   1 PTF Physician

VERMONT

Burlington,  VT  05401
1 Expert

WASHINGTON

Seattle, WA  98109
   1 PTF Physician