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About

The Shadow Jumpers program was initiated by APF member Craig Leppert in partnership with the American Porphyria Foundation. Craig was diagnosed with EPP at a young age and grew a love for overcoming the sun to do anything and everything outside. Defying that outdoor adversity led to Craig and his family to being featured on national programs such as the Dr. Oz Show, Mystery Diagnosis,

sj_about.jpgABC News and numerous print publications – in coordination with the APF. Through that spotlight, Craig was able to connect with many EPP patients and hear their stories. It troubled him to see so many people letting the sun and EPP dictate their life. Young people were abandoning thoughts of pursuing dreams, adventures, careers or even relationships out of the fear to what would happen to them. Craig, who graduated from Syracuse University and now resides in Los Angeles, developed the idea of the Shadow Jumpers project to encourage young people with EPP to overcome the sun to do anything they’ve always wanted to do. Shadow Jumpers will feature information and programs geared toward our youngest members. People with EPP have been jumping from shadow to shadow for years…now we have a place to share that they are not alone! The American Porphyria Foundation is pleased to support this wonderful program for EPP children and families. Contact us anytime on shadowjumpers@porphyriafoundation.org or on 1-866-APF-3635.