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Patient Education Meetings

The APF organizes Patient Education Meetings across the U.S. Do you have questions about your rare disease? Would you like to connect with others who are also managing your condition? Attending a Patient Education and Support Meeting is a wonderful opportunity to get educated and to meet others in your community. A meeting can range from 10-50 people, depending on the area.  A Porphyria Expert participates in each meeting offering information on current and emerging treatments and responding to Q&A. Join the APF, and you will receive meeting location updates!

Interested in hosting a Patient Education Meeting? Check out how in GET INVOLVED.