American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


May 28, 2020

The Latest Rare Disease Webinars Focused on COVID-19

The Latest Rare Disease Webinars Focused on COVID-19

permission to share checkrare.com

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Member Story- Tonya Carpenter-Love Type of Porphyria  Acute Intermittent Porphyria (AIP)
May 22, 2020

Member Story- Tonya Carpenter-Love Type of Porphyria Acute Intermittent Porphyria (AIP)

Member Story- Tonya Carpenter-Love
Type of Porphyria

Acute Intermittent Porphyria (AIP)

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May 12, 2020

NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT

NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT

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Nurses Thank you day
May 6, 2020

Nurses Thank you day

RN Thank you

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APF Patient Portal
May 4, 2020

APF Patient Portal

APF Patient Portal

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