This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
Permission to share Erin Paterson 12/20/19
Current Research Needs – Observational Studies, Clinical Trials, and surveys
How My Family Helps Me Through My Pain & How I Can Return The Favor
