American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Glossary of Terms
October 23, 2020

Glossary of Terms

Glossary of Terms APF

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What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel
October 19, 2020

What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel

Permission to share Erin Paterson 12/20/19

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Current Research Needs – Observational Studies, Clinical Trials, and surveys
October 9, 2020

Current Research Needs – Observational Studies, Clinical Trials, and surveys

Current Research Needs – Observational Studies, Clinical Trials, and surveys

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How My Family Helps Me Through My Pain & How I Can Return The Favor
September 28, 2020

How My Family Helps Me Through My Pain & How I Can Return The Favor

How My Family Helps Me Through My Pain & How I Can Return The Favor

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