This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
Today we feature one of least talked about porphyria's and that is CEP!
Exactly what is it, how does it affect a person inside and outside of the body. Learn what these members have to endure and how we can show our support for them. If you are a member with CEP please consider sharing how you were diagnosed with CEP, has it affected you as a child, an adult. What advancements have their been and what is upcoming in the medical world with CEP.