This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
We hope you enjoyed Dr. Wang's Expert Information on the AHP's if you need a free patient packet please call us at
1.866.APF.3635 the APF will be happy to help you.
Rare Disease Day 2020 is this Saturday 29 February!
If you have attacks of Acute Porphyria you may be familiar with the Drug Panhematin.
It is the first Orphan drug & has helped many around the world.
Porphyria is a family of rare, genetic diseases characterized by potentially life-threatening attacks and, for some patients, chronic debilitating symptoms that negatively impact daily functioning and quality of life.
