American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Spring Tips &  The Porphyrias
March 14, 2021

Spring Tips & The Porphyrias

Spring & Spring Break Tips 2021 with COVID

More


Medical Moment
March 10, 2021

Medical Moment

Medical Moment

More


March 7, 2021

Porphyria Awareness Week 2021

PAW 2021

More



Learn ALL you can about CEP! Gunther's Disease
March 2, 2021

Learn ALL you can about CEP! Gunther's Disease

Today we feature one of least talked about porphyria's and that is CEP!

Exactly what is it, how does it affect a person inside and outside of the body.  Learn what these members have to endure and how we can show our support for them.  If you are a member with CEP please consider sharing how you were diagnosed with CEP, has it affected you as a child, an adult.  What advancements have their been and what is upcoming in the medical world with CEP.  

More


10 of 28 total pages