American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


New Year
December 31, 2019

New Year

We wish you all a Happy & Healthy 2020!

More


Why Join Research
December 23, 2019

Why Join Research

Have you ever been involved in Clinical Studies or an observational study? Please give serious thought to joining. Please contact the APF at 1.866.APF.3635.

More


How rare is RARE
December 23, 2019

How rare is RARE

A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000.

More


Informative Porphyria Post
December 19, 2019

Informative Porphyria Post

The 4th Quarter APF newsletter has been mailed and is hitting doorsteps as we speak. In case you missed the latest copy, you can read it on the APF website.

More


Can porphyria cause mental illness?
December 17, 2019

Can porphyria cause mental illness?

Can porphyria cause mental illness? Acute intermittent porphyria mimics a variety of commonly occurring disorders and thus poses a diagnostic quagmire.

More


12 of 14 total pages