This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
The Latest Rare Disease Webinars Focused on COVID-19
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Member Story- Tonya Carpenter-Love
Type of Porphyria
Acute Intermittent Porphyria (AIP)
NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT
