American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org

August 23, 2021

Racing for a Cure or racing for help?

RACE for a Cure or racing for help?

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August 17, 2021

Jennifer Long and AIP Journey

Jennifer Long

Type of Porphyria

Acute Intermittent Porphyria (AIP)

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August 10, 2021

Medical Moments- What diagnostic tests are available? Are the diagnostic tests the same for all porphyrias?

Medical Moment

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August 2, 2021

Have you ever heard of Hepatoerythropoietic Porphyria (HEP)

hepatoerythropoietic porphyria (HEP) NIH 

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July 30, 2021

ADA Learn About the National Network

ADA permission to share

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12 of 36 total pages