This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
Have you ever been involved in Clinical Studies or an observational study? Please give serious thought to joining. Please contact the APF at 1.866.APF.3635.
A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000.
The 4th Quarter APF newsletter has been mailed and is hitting doorsteps as we speak. In case you missed the latest copy, you can read it on the APF website.
