American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Member story Gabrielle Nomberto with AIP
November 10, 2020

Member story Gabrielle Nomberto with AIP

Member story with AIP

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Management Of Porphyrias
October 26, 2020

Management Of Porphyrias

Permission to usa GARD NIH

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Glossary of Terms
October 23, 2020

Glossary of Terms

Glossary of Terms APF

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What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel
October 19, 2020

What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel

Permission to share Erin Paterson 12/20/19

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