American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org

November 10, 2020

Member story Gabrielle Nomberto with AIP

Member story with AIP

November 4, 2020

GET INVOLVED. HOW? Current Research Needs – Observational Studies, Clinical Trials, and surveys

APF RESEARCH INFO

October 26, 2020

Management Of Porphyrias

Permission to usa GARD NIH

October 23, 2020

Glossary of Terms

Glossary of Terms APF

October 19, 2020

What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel

Permission to share Erin Paterson 12/20/19

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