American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Current Research Needs – Observational Studies, Clinical Trials, and surveys
October 9, 2020

Current Research Needs – Observational Studies, Clinical Trials, and surveys

Current Research Needs – Observational Studies, Clinical Trials, and surveys

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How My Family Helps Me Through My Pain & How I Can Return The Favor
September 28, 2020

How My Family Helps Me Through My Pain & How I Can Return The Favor

How My Family Helps Me Through My Pain & How I Can Return The Favor

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Upcoming News -Virtual Patient Education Meetings Member Stories
September 25, 2020

Upcoming News -Virtual Patient Education Meetings Member Stories

Upcoming News -Virtual Patient Education Meetings Member Stories APF Store

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How can I help my doctor understand the severity of my pain?
September 23, 2020

How can I help my doctor understand the severity of my pain?

How can I help my doctor understand the severity of my pain?

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