American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org



Learn ALL you can about CEP! Gunther's Disease
March 2, 2021

Learn ALL you can about CEP! Gunther's Disease

Today we feature one of least talked about porphyria's and that is CEP!

Exactly what is it, how does it affect a person inside and outside of the body.  Learn what these members have to endure and how we can show our support for them.  If you are a member with CEP please consider sharing how you were diagnosed with CEP, has it affected you as a child, an adult.  What advancements have their been and what is upcoming in the medical world with CEP.  

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Acute Intermittent Porphyria (AIP) By the APF
February 18, 2021

Acute Intermittent Porphyria (AIP) By the APF

Acute Intermittent Porphyria (AIP)

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2021  Patient Education Meetings
February 16, 2021

2021 Patient Education Meetings

Patient Education Meetings for 2021

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