American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


You are invited to a Virtual Patient Education Meeting with Dr. Amy Dickey
November 25, 2020

You are invited to a Virtual Patient Education Meeting with Dr. Amy Dickey

You are invited to a Virtual Patient Education Meeting with Dr. Amy Dickey

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Medical Moment
November 18, 2020

Medical Moment

Medical Moment

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Member story Gabrielle Nomberto with AIP
November 10, 2020

Member story Gabrielle Nomberto with AIP

Member story with AIP

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Management Of Porphyrias
October 26, 2020

Management Of Porphyrias

Permission to usa GARD NIH

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