American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Porphyria Stronger Together Click Campaign July 17th, 2020
July 10, 2020

Porphyria Stronger Together Click Campaign July 17th, 2020

#Porphyria Click Campaign  

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How to Fundraise during COVID?
July 7, 2020

How to Fundraise during COVID?

How to Fundraise during COVID?

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July 6, 2020

Congenital Erythropoietic Porphyria

  • Permission to share. If you are looking for references to read about CEP this would be it.

Congenital Erythropoietic Porphyria

Synonym: Günther Disease

Angelika Erwin, MD, PhD, Manisha Balwani, MD, MS, Robert J Desnick, MD, PhD, FACMG; Porphyrias Consortium of the NIH-Sponsored Rare Diseases Clinical Research Network.

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June 29, 2020

Todays Highlight What is HCP? Hereditary coproporphyria

Permission to share Information NIH PC

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