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This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT
Porphyria Awareness Week2020
Round Up Day
https://conta.cc/3cQT9Td
American Porphyria Foundation Purple Light Blog -XLP Protopporphyria
