American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org

November 4, 2020

GET INVOLVED. HOW? Current Research Needs – Observational Studies, Clinical Trials, and surveys

APF RESEARCH INFO

October 23, 2020

Glossary of Terms

Glossary of Terms APF

October 19, 2020

What It's Like to Test Positive for a Rare Disease and No One Understands How You Feel

Permission to share Erin Paterson 12/20/19

October 9, 2020

Current Research Needs – Observational Studies, Clinical Trials, and surveys

October 7, 2020

APF Pet Project 2021 Calendars (Submission & Voting Time Instructions)

Pet Project

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