American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Clinuvel Announcement

Clinuvel Announcement

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Day 5 #ASKMEABOUTPORPHYRIA #XLP

Day 5 #ASKMEABOUTPORPHYRIA #XLP

Day 5 #ASKMEABOUTPORPHYRIA #XLP

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NEW PORPHYRIA POST

PORPHYRIA POST

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COVID 19 PC & APF

COVID 19 PC & APF

COVID 19 pc apf

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VERY IMPORTANT SURVEY!

VERY IMPORTANT SURVEY!

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