American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org

February 1, 2022

Medical Moment- Basics of Porphyria. Click the like button if you know this one. WHAT IS PORPHYRIA?

January 27, 2022

Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

Pain article Porphyria Patients With permissions

January 12, 2022

Grand Rounds with Speaker Dr. Martine Extermann

Grand Rounds

January 7, 2022

Extremely important for EPP patients

December 29, 2021

Medical Moment- What is the Heme Biosynthetic Pathway?

Medical Moment-

What is the Heme Biosynthetic Pathway?

Why are some porphyrias in the liver and others erythropoietic?

What does it have to do with hemoglobin?

porphyriafoundation.org

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