American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Jennifer Long and AIP Journey
August 17, 2021

Jennifer Long and AIP Journey

Jennifer Long

Type of Porphyria

Acute Intermittent Porphyria (AIP)

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Have you ever heard of Hepatoerythropoietic Porphyria (HEP)
August 2, 2021

Have you ever heard of Hepatoerythropoietic Porphyria (HEP)

hepatoerythropoietic porphyria (HEP) NIH 

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ADA Learn About the National Network
July 30, 2021

ADA Learn About the National Network

ADA permission to share

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