American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


May 12, 2020

NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT

NIH's Rare Diseases Clinical Network (RDCRN) Survey - IMPORTANT

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Nurses Thank you day
May 6, 2020

Nurses Thank you day

RN Thank you

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APF Patient Portal
May 4, 2020

APF Patient Portal

APF Patient Portal

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Porphyria Awareness Week2020 Round Up Day
April 25, 2020

Porphyria Awareness Week2020 Round Up Day

Porphyria Awareness Week2020
Round Up Day
https://conta.cc/3cQT9Td

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American Porphyria Foundation Purple Light Blog -XLP Protopporphyria
April 23, 2020

American Porphyria Foundation Purple Light Blog -XLP Protopporphyria

American Porphyria Foundation Purple Light Blog -XLP Protopporphyria

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