American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


July 6, 2020

Congenital Erythropoietic Porphyria

  • Permission to share. If you are looking for references to read about CEP this would be it.

Congenital Erythropoietic Porphyria

Synonym: Günther Disease

Angelika Erwin, MD, PhD, Manisha Balwani, MD, MS, Robert J Desnick, MD, PhD, FACMG; Porphyrias Consortium of the NIH-Sponsored Rare Diseases Clinical Research Network.

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June 29, 2020

Todays Highlight What is HCP? Hereditary coproporphyria

Permission to share Information NIH PC

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The 2020 Rare Artist Contest opens June 16th!
June 2, 2020

The 2020 Rare Artist Contest opens June 16th!

The 2020 Rare Artist Contest opens

June 16th!

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May 28, 2020

The Latest Rare Disease Webinars Focused on COVID-19

The Latest Rare Disease Webinars Focused on COVID-19

permission to share checkrare.com

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