This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org
Synonym: Günther Disease
Angelika Erwin, MD, PhD, Manisha Balwani, MD, MS, Robert J Desnick, MD, PhD, FACMG; Porphyrias Consortium of the NIH-Sponsored Rare Diseases Clinical Research Network.
Permission to share Information NIH PC
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