American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


Meet Dr. Karl Anderson at the Patient Education Meeting
August 31, 2021

Meet Dr. Karl Anderson at the Patient Education Meeting

Dr. Karl Anderson Bio permitted by the APF

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Racing for a Cure or racing for help?
August 23, 2021

Racing for a Cure or racing for help?

RACE for a Cure or racing for help?

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Jennifer Long and AIP Journey
August 17, 2021

Jennifer Long and AIP Journey

Jennifer Long

Type of Porphyria

Acute Intermittent Porphyria (AIP)

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Have you ever heard of Hepatoerythropoietic Porphyria (HEP)
August 2, 2021

Have you ever heard of Hepatoerythropoietic Porphyria (HEP)

hepatoerythropoietic porphyria (HEP) NIH 

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