American Porphyria Foundation Purple Light Blog

This blog is dedicated to all the Porphyria patients worldwide. The American Porphyria Foundation will provide updates and information here, as well as on the main site - http://porphyriafoundation.org


American Porphyria Announcements
January 8, 2020

American Porphyria Announcements

Are you ready to face new challenges with your Porphyria? Need assistance in learning and understanding what to say to your treating physician. No matter where you live be prepared.

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Clara Hauke Personal Journey with EPP
January 6, 2020

Clara Hauke Personal Journey with EPP

I'm 18 years old and have experienced pain after staying in the sun since I was about 2 years old. When I was 2, I was outside and all of the sudden I started crying. Nobody knew why and my parents asked themselves whether or not I was pretending.

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Diagnosis of the Porphyrias
January 3, 2020

Diagnosis of the Porphyrias

First-line Testing for the Acute Porphyrias

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New Year
December 31, 2019

New Year

We wish you all a Happy & Healthy 2020!

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Why Join Research
December 23, 2019

Why Join Research

Have you ever been involved in Clinical Studies or an observational study? Please give serious thought to joining. Please contact the APF at 1.866.APF.3635.

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