About the APF


The American Porphyria Foundation has supported the Porphyria community since 1983. Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias. 

The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs.

Our Scientific Advisory Board is made up of the world's foremost experts in Porphyria management, diagnosis, and research. They have written or approved the medical information on this website.