Global Porphyria Alliance

The APF is proud to support our members that live across the globe. Many countries around the world have developed organizations to support their local communities. We hope that enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria.

Here are links to patient advocacy groups worldwide that offer support to individuals impacted by porphyria.

See the Member Stories section for personal reflections from members of some of our friends outside the U.S.