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Join the APF

Please complete the following form to join or renew membership to the American Porphyria Foundation.  Although membership is free, the suggested annual membership donation is $35 for members who live in the US, $45 for international members.  Although we welcome any donation, please remember that membership is complimentary.  Together we can be a force for improved Porphyria healthcare. After you complete this form, please follow the instructions on the next page if you would like to contribute a suggested membership donation to the APF.  If you choose not to donate simply click the link at the bottom of the donation form to return to the website.

The American Porphyria Foundation relies on member support to sustain programs like research, the newsletters, the website and other literature written or approved by Porphyria experts, support programs, the Protect the Future program to train future Porphyria experts and our comprehensive patient and physician educational programs and services.

Thank you!

Which of the following best describes you?

Your answers to the following questions will provide very important information and have a direct impact on foundation activities.

If you are being treated for porphyria, which type do you have:
Would you be interested in volunteering for porphyria medical research?
Would you like to receive additional educational material regarding porphyria?

For educational and clinical research purposes, the APF would like to have contact information for the physician who has primary responsibility for managing your porphyria. The APF will send a comprehensive information package on the diagnosis and treatment of the porphyrias to your physician, if you are a member of the APF.

Please complete the requested information below.

Privacy reminder:

The American Porphyria Foundation is committed to maintaining the security of your information.

We will only collect information about you if you voluntarily provide it to us. We will use this information to better understand our members, and the data will only be shared with our advisors and APF members (with your permission). Your information, including your email address, will never be sold to any other third party organization under any circumstances without your consent unless required by law. You may remove yourself from this list at any time by contacting the APF.