Porphyria Experts

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The APF collaborates with a network of porphyria experts that are members of the APF Advisory Board and the Porphyrias Consortium. Porphyria experts typically require a diagnosis prior to accepting a new patient. Please see the Diagnosis and Testing section for diagnostic information.

There are also Protect the Future physicians who are training to become the next generation of porphyria experts. This is a critical program to maintain excellence in diagnosis, management, and treatment of the porphyrias. 

The APF maintains a list of physicians across the US and in many global locations that are knowledgeable about the diagnosis, management, and treatment of the porphyrias.

The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.

Please contact the APF office on 866.APF.3635 to learn about our Porphyria Centers and Satellite centers. If you are not near a Porphyria Center, we can connect you with potential doctors in your area. Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and Scientific Advisory Board. 


* Each city listed will display the number of Porphyria Experts and the number of physicians?that have trained with a porphyria expert and is in the PTF program.

ALABAMA

Birmingham, AL 35294
   1 Expert
   1 PTF Physician

Montgomery, AL 36106
   1 Expert

ARIZONA

Phoenix, AZ 85003
   1 PTF Physician

CALIFORNIA

San Francisco, CA 94143
   1 Expert

Los Angeles, CA 90095
   1 PTF Physician

FLORIDA

Miami, FL 33136
   1 PTF Physician

ILLINOIS

Chicago, IL 60612
   2 PTF Physicians

KENTUCKY

Lexington, KY 40536
   1 Expert

MASSACHUSETTS

Boston, MA 02115
   2 PTF Physician

MINNESOTA

Minneapolis, MO 55455
   1 Expert
   1 PTF Physician

MISSOURI

Kansas City, MO 64131
   1 PTF Physician

NEW YORK

New York, NY 10029
   1 Expert
   2 PTF Physicians

NORTH CAROLINA

Huntersville, NC 28078
   1 PTF Physician

Matthews, NC 28105
   1 PTF Physician

Winston - Salem, NC 27157
   1 Expert

OHIO

Cleveland OH 44195
   1 PTF Physician
 

PENNSYLVANIA

Philadelphia, PA 19107
   1 Expert

Pittsburgh, PA 15213
   1 PTF Physician

TEXAS

Galveston, TX 77555-1109
   1 Expert

Houston, TX 77030
   2 PTF Physicians

UTAH

Salt Lake City, UT 84132
   1 Expert
   1 PTF Physician

WASHINGTON

Seattle, WA 98109
   1 PTF Physician