The APF maintains a database of over 5,500 physicians, researchers, and porphyria experts who treat the porphyrias. The APF cannot validate the level of porphyria expertise of these physicians. Many of the physicians listed have been provided to us by patients who are being treated. The list has been compiled to assist porphyria patients in locating porphyria experts and treating physicians.
For assistance, please contact the APF office on 866.APF.3635.