The APF maintains a list of Porphyria Experts, who are either experts or who are training with a Porphyria Expert in the Protect the Future program to train future experts. The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area. Please note that the list is updated frequently, so check it often or contact the APF for additional physicians.
To use the list, first locate a city nearest you. For the doctor's name and contact information in your area, call the APF Toll Free: 1.866.APF.3635.
The APF also maintains a database of physicians across the United States and globally that are familiar with Porphyria, though we are not able to validate their level of experience. Please contact the APF for a physician in your area.
* Each city listed will display the number of Porphyria Experts and the number of physicians that have trained with a porphyria expert and is in the PTF program.
Birmingham, AL 35294
1 Expert
2 PTF Physicians
Montgomery, AL 36106
1 Expert
Phoenix, AZ 85003
1 PTF Physician
San Francisco, CA 94143
2 Experts
2 PTF Physicians
Los Angeles, CA 90095
1 PTF Physician
Miami, FL 33136
1 PTF Physician
Chicago, IL 60612
2 PTF Physicians
Lexington, KY 40536
1 Expert
Boston, MA 02115
1 PTF Physician
Kansas City, MO 64131
1 PTF Physician
New York, NY 10029
2 Experts
2 PTF Physicians
Huntersville, NC 28078
1 PTF Physician
Matthews, NC 28105
1 PTF Physician
Winston - Salem, NC 27157
1 Expert
Fargo, ND 58102
1 PTF Physician
Independence OH 44131
1 PTF Physician
Philadelphia, PA 19107
1 Expert
Pittsburgh, PA 15213
1 PTF Physician
Galveston, TX 77555-1109
1 Expert
4 PTF Physicians
Houston, TX 77030
2 PTF Physicians
Salt Lake City, UT 84132
1 Expert
1 PTF Physician
Burlington, VT 05401
1 Expert
Seattle, WA 98109
1 PTF Physician
