Porphyria Experts

The APF collaborates with a network of porphyria experts that are members of the APF Advisory Board and the Porphyrias Consortium. Porphyria experts typically require a diagnosis prior to accepting a new patient. Please see the Diagnosis and Testing section for diagnostic information.

There are also Protect the Future physicians who are training to become the next generation of porphyria experts. This is a critical program to maintain excellence in diagnosis, management, and treatment of the porphyrias. 

The APF maintains a list of physicians across the US and in many global locations that are knowledgeable about the diagnosis, management, and treatment of the porphyrias.

The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.

Please contact the APF office on 866.APF.3635 to learn about our Porphyria Centers and Satellite centers. If you are not near a Porphyria Center, we can connect you with potential doctors in your area. Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and Scientific Advisory Board. 

* Each city listed will display the number of Porphyria Experts and the number of physicians?that have trained with a porphyria expert and is in the PTF program.