Porphyria Experts

The APF maintains a list of over 5,500 physicians who treat porphyria patients. The APF cannot validate the porphyria expertise of these physicians. If you would like to know how to contact a doctor, please contact the APF at 866-APF-3635.

The APF maintains a list of physicians across the US and in many global locations that are knowledgeable about the diagnosis, management, and treatment of the porphyrias.

The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.

Please contact the APF office on 866.APF.3635 to learn about our Porphyria Centers and Satellite centers. If you are not near a Porphyria Center, we can connect you with potential doctors in your area. Please note that we are unable to validate level of expertise, accepted insurance forms, or appointment availability of those outside of our Porphyrias Consortium and Scientific Advisory Board. 

* Each city listed will display the number of Porphyria Experts and the number of physicians that have trained with a porphyria expert and is in the PTF program.