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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentess focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Birmingham - Patient Education Meeting Cancelled

Tuesday, March 31, 2020

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COVID-19 Updates on the APF Website

Friday, March 27, 2020

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Clinuvel To Launch SCENESSE® In USA In April

Friday, March 27, 2020

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Upcoming Foundation Events

April 18, 2020 - April 25, 2020

Porphyria Awareness Week

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May 2, 2020 - May 5, 2020

Digestive Disease Week - Cancelled

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May 25, 2020

Memorial Day - APF Office Closed

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