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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

NLB Donates Thousands Light Bulbs to the APF!

Friday, July 31, 2020

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Ready for some FUN? The APF Pet Fashion Show!

Friday, July 31, 2020

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Stay Tuned For An Upcoming Zoom Series

Friday, July 31, 2020

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Upcoming Foundation Events

September 7, 2020

APF Office Closed Labor Day

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September 21, 2020 - September 23, 2020

Global Genes Patient Advocacy Summit

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