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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

NORD Rare Impact Awards Honors Alnylam

Friday, October 16, 2020

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The APF 2021 Pet Calendar Contest

Friday, October 16, 2020

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Treatment Testimonials

Friday, October 16, 2020

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Upcoming Foundation Events

October 26, 2020

Virtual Patient Education Meeting with Dr. Sioban Keel

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November 5, 2020

You are invited to a Virtual Patient Education Meeting with Dr. Manish Thapar

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November 11, 2020

APF Office Closed

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