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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Patient Day HEME BIOSYNTHESIS AND THE PORPHYRIAS 2021

Friday, September 3, 2021

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The Porphyrias Consortium CEP Focus Group

Friday, September 3, 2021

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Givlaari Networking Forum

Friday, September 3, 2021

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Upcoming Foundation Events

October 11, 2021

APF Office Closed

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October 22, 2021 - October 27, 2021

Las Vegas ACG 2021

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November 11, 2021

APF Office Closed

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