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American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Current Research Opportunities

Friday, May 29, 2020

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Panhematin® Prevention Study

Friday, May 29, 2020

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You are Needed for a Short-term EPP Research Study!

Friday, May 29, 2020

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Upcoming Foundation Events

July 3, 2020

APF Office Closed Independence Day 2020

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September 7, 2020

APF Office Closed Labor Day

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September 21, 2020 - September 23, 2020

Global Genes Patient Advocacy Summit

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