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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Message from the Executive Director

Tuesday, April 6, 2021

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Countdown to Porphyria Awareness Week!

Friday, April 2, 2021

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Rare Disease Week 2021

Friday, April 2, 2021

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Upcoming Foundation Events

April 28, 2021

Understanding Your Genetic Testing Results

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May 18, 2021

Virtual Patient Education Meeting with Dr. Sean Rudnick

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May 31, 2021

APF Office Closed

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