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American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Porphyria Awareness Week 2021

Friday, March 5, 2021

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Patient Education Session Importance of Research Participation

Friday, February 26, 2021

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Rare Disease Day 2021

Friday, February 26, 2021

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Upcoming Foundation Events

April 10, 2021

April 10 – Porphyria Awareness Week – Day 1

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April 11, 2021

April 11 – Porphyria Awareness Week – Day 2

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April 12, 2021

April 12 - Porphyria Awareness Week – Day 3

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