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American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

COVID-19 Vaccines Update: FDA & CDC Address Rare Disease Community

Friday, January 15, 2021

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COVID-19 and Porphyria Vaccine Statement

Friday, January 15, 2021

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Rare Disease Day at NIH 2021 Registration is Open!

Friday, January 15, 2021

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Upcoming Foundation Events

January 28, 2021

Genetics 101 with Dr. Hetanshi Naik

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February 15, 2021

APF Office Closed

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February 25, 2021

Importance of Research Participation with Karli Hedstrom

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