For Patients

For Patients

  For Healthcare Professionals

For Healthcare Professionals

  Safe / Unsafe Drug Database

Safe / Unsafe Drug Database

  Emergency Room Guidelines

Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Goodbye & Welcome to APF's Latest Staff Member!

Friday, July 2, 2021

Read More

CPAG Steering Committee Welcomes New Leadership Team

Friday, July 2, 2021

Read More

Rare Disease Week 2021

Friday, July 2, 2021

Read More

 

Read All APF News

Upcoming Foundation Events

September 6, 2021

APF Office Closed

Read More

October 11, 2021

APF Office Closed

Read More

November 11, 2021

APF Office Closed

Read More

 

See All Upcoming Events