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Emergency Room Guidelines for Porphyria

American Porphyria Foundation

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias.

What is Porphyria?

Porphyria is not a single disease but a group of eight inherited genetic disorders that differ considerably from each other. A common feature in all Porphyrias is the accumulation in the body of porphyrins and porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of Porphyria.

Latest Porphyria News

Dr. Herbert Bonkovsky wins ACG Presidential Poster Award

Friday, November 20, 2020

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NORD Publishes Rareinsights Report

Friday, November 20, 2020

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Mitsubishi Phase 3 Clinical Trial for MT-7117 NEW SITES!

Friday, November 20, 2020

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Upcoming Foundation Events

November 26, 2020 - November 27, 2020

Thanksgiving Holiday - APF Office Closed

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December 1, 2020

You are invited to a Virtual Patient Education Meeting with Dr. Amy Dickey

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December 24, 2020 - December 25, 2020

Christmas Holiday - APF Office Closed

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