APF Staff


Dear Porphyria Friends,

The APF celebrated our 40th birthday on February 15, 2022. That same week, we marked a membership milestone of 15,000 patients, families, physicians and friends from all over the globe. The work of the APF is ever-expanding. As co-founder of the APF along with Mr. James Young, I assure you that I will continue to serve as director until our new executive director is named.

Remember YOU are the APF!! Helping YOU is our most important activity and will remain our top priority now and for the next 40 years.

Desiree Lyon
Executive Director


APF Team

Desiree Lyon Director
Amy Chapman Social Media Director
Paxton Cumming Global Patient Coordinator
Yvette Strange Office Management
Carol Hughes Office Supervisor
Deborah Fedele Data Entry Coordinator
Elizabeth Brougher Media Affairs Project Coordinator
Cathy Phillips Accounts Manager
Virginia Salcutan Office Projects Coordinator
Natalia Sturza Computer Projects Coordinator