APF Staff


Dear Porphyria Friends,

The APF celebrated our 40th birthday on February 15, 2022. That same week, we marked a membership milestone of 15,000 patients, families, physicians and friends from all over the globe. The work of the APF is ever-expanding. As co-founder of the APF along with Mr. James Young, I assure you that I will continue to serve as director until our new executive director is named.

Remember YOU are the APF!! Helping YOU is our most important activity and will remain our top priority now and for the next 40 years.

Desiree Lyon
Executive Director


Executive Director
Desiree Lyon

Global Patient Coordinator
Pax Cumming

Social Media Director
Amy Chapman

Team Members
Amy Burke
Elizaeth Brougher
Susan Calderazzo
Deborah Fedele, RN
Joseph Heflin, MD
Carol Hughes
Yvette Strange
Natalia Sturza