FOR SUPPORT, CALL
1-866-APF-3635 (273-3635)
Donate
Join APF
Contact
Toggle navigation
Search
Keywords
Search
About the APF
About the APF
History of the APF
Protect the Future Experts
Protect the Future
APF Staff
Board of Trustees
For Patients
Patient Portal
About Porphyria
Types of Porphyria
Support & Assistance
Porphyria Experts and Treating Physicians
Diet and Nutrition
Global Porphyria Alliance
Member Stories
Media Coverage and Porphyria Videos
Shadow Jumpers
For Healthcare Professionals
Healthcare Professional Portal
Porphyria
Diagnosis and Testing
AHP Drug Safety Database
Emergency Room Guidelines for Acute Porphyrias
Publications
CME and Additional Resources
Frequently Asked Questions (FAQ)
Glossary of Terms
Get Involved
Get Involved
Join the APF
All Events
Volunteer
Donate
Current Research Needs – Observational Studies, Clinical Trials, and surveys
Fundraise
Advocate
APF Store
News
All News
Newsletter
Podcast
All News
Alnylam Sponsored Educational Event
June 9, 2026
Read More
APF-FDA COMMITTEE and Patient Perspective Submission to the FDA – re Bitopertin for EPP/XLP
June 2, 2026
Read More
PORPHYRIA Patient Meeting - Pittsburgh
May 18, 2026
Read More
Alnylam Sponsored Educational Event
May 6, 2026
Read More
Bitopertin Expanded Access Program
April 28, 2026
Read More
PORPHYRIA Patient Meeting - Chicago
April 18, 2026
Read More
EPP and XLP Patient ZOOM
April 13, 2026
Read More
PORPHYRIA Patient Meeting - Los Angeles
March 19, 2026
Read More
PORPHYRIA Patient Meeting
January 31, 2026
Read More
New Executive Director
December 8, 2025
Read More
«
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
31
32
33
34
35
36
37
38
39
40
41
42
»
1 of 42 total pages