Erythropoietic Protoporphyria (EPP)
I am currently 18 years of age and diagnosed with EPP at the age of 6. Growing up was hard when I would come in crying to my mom telling her my feet and hands burned along with my whole body. We would frequent the doctors but they never had an answer, nothing but, its just a rash.
After I finally found out what was really wrong, I felt better just being assured of a diagnosis. Still nothing would help the burning and countless hours of pain I endured anytime I stepped my foot outside. I try to keep confidence in that someday in my lifetime there will be something that will greatly help my condition.