April 16 - Porphyria Awareness Week – Day 7

Click on the link below to encourage your member of congress to join the Rare Disease Congressional Caucus (RDCC) on behalf of you and everyone who is affected by Porphyria and the rest of the rare disease community.

All you have to do is enter your contact information and the system will automatically generate a letter to your state representatives!https://rareadvocates.org/take-action/?vvsrc=%2fcampaigns%2f66800%2frespond