Porphyria Awareness Week 2018

Porphyria Awareness Week will be held on April 21-28, 2018. We strive to dedicate this week to promote this group of rare diseases, reduce the stigma associated with porphyria through physician education, and provide support for those affected.

Porphyria Awareness Week is the time for you to bring porphyria awareness to your local communities. We, at the American Porphyria Foundation, encourage You to help raise awareness and provide accurate information about porphyria where you live. The APF will help you accomplish your own activity by providing:

  • Porphyria Brochures
  • Porphyria Fact Sheets
  • PorphyriaLive DVDs
  • Information to gain media attention
  • PowerPoint presentations,
  • Porphyria Awareness week Graphics for Print, Web, and Social media (See downloads below)
  • Press releases for local newspapers and television and Much More!

Contact Edrin at the APF office today to request information to be sent to you!

1.866.APF.3635 or email: edrinw@porphyriafoundation.org



U.S.: Porphyria Awareness Week complete package Includes (each packet can also be downloaded individually)


International Porphyria Awareness Week Complete package includes (each packet can also be downloaded individually):

Fb Photo and Video Frame : Spread the Word!