Porphyria Awareness Week 2025

SPONSORED BY

The Porphysica Awarenss Week Agenda is:

ACTIVITIES FOR NATIONAL PORPHYRIA AWARENESS WEEK (NPAW)

May 12-18, 2025

NPAW is the time for you to reach out to your healthcare professionals to share educational materials and to the local media in your community to share your experience. Please contact imani@porphyriafoundation.org, and she can email you porphyria materials to hand out. Plus, we have NPAW activities for you to enjoy.

The Recordati Click Campaign will transpire all week.   

The APF has partnered with Recordati Rare Diseases to raise awareness of #Porphyria.

From May 12-18, 2025, be sure to CLICK THIS LINK  https://porphyriafoundation.org/, and @RecordatiRareUS will donate $5 (up to $5k) on your behalf to the American Porphyria Foundation. Spread awareness and help the APF attain a $5000 donation from Recordati. Thank you!