The study includes a screening call and one 90-minute interview.
- If you experienced at least one porphyria attack in the past 2 years, but no more than 2 attacks-per-year in the past 2 years, and
- If you are not taking prophylactic Panhematin OR Givlaari
…you are needed for this study! Contact the APF today at general@porphyriafoundation.org for more information.