Acute Porphyria Study Participants Urgent Need!

  • Friday, September 18, 2020

The study includes a screening call and one 90-minute interview.

  • If you experienced at least one porphyria attack in the past 2 years, but no more than 2 attacks-per-year in the past 2 years, and
  • If you are not taking prophylactic Panhematin OR Givlaari

…you are needed for this study! Contact the APF today at info@porphyriafoundation.org for more information. 

Participants may be eligible to receive a stipend.