Acute Porphyria Survey

  • Friday, February 8, 2019

A research company has initiated an online survey to get a deeper understanding of patients’ experiences living with acute porphyria. The study can be taken on a laptop or desktop computer and will take approximately 30 minutes to complete. Participants will be screened to ensure they meet the criteria listed below.

Participants will receive a $50 stipend!


  1. Are 18 years of age or older
  2. Have been diagnosed with Acute Hepatic Porphyria (specific types include Acute Intermittent Porphyria, Variegate Porphyria, Hereditary Coproporphyria).
  3. Own and are comfortable using a laptop or a desktop computer
  4. Have internet access

Please call the APF at 866-APF-3635 to participate in the survey.