Attention All Acute Patients!!

  • Thursday, March 21, 2019

Have you had trouble getting PANHEMATIN in a hospital for ANY REASON - please contact the APF on 866-APF-3635 or email info@porphyriafoundation.org.

We need to hear your story. The APF is gathering your patient stories to prove that this is an issue across the US and to advocate for access to treatment on a federal level.