Current Research Opportunities

Are you interested in participating in research? If so, we need you! Below is a list of current studies, clinical trials, and surveys that need participants. Click on the link below to view more information on the APF website! This will be updated as new opportunities arise. “Remember…Research is the Key to Your Cure!”

1. Panhematin Prevention Study – Acute Porphyria
2. MT-7117 Phase 3 Clinical Trial for EPP/XLP
3. Acute Porphyria Survey – Patients with 1-2 attacks per year
4. Harvoni Study for PCT
5. SunSense - Short Term Study for EPP

Click Here for Current Research Opportunities

If you are interested in participating in research, please contact the American Porphyria Foundation today!

general@porphyriafoundation.org; 1-866-APF-3635