Diagnostic Delay

  • Wednesday, July 17, 2019

In a recent Facebook post, Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience in getting a diagnosis. In reference to an article written by Porphyria Expert, Dr. Manisha Balwani, 22% of people living with EPP will visit more than ten doctors before receiving a diagnosis. The cause of this delay? Lack of awareness among the medical community. Though much progress has been made in the years, there is still a ways to go. Clinuvel recognizes this problem and is working to help raise awareness among the medical field.

The Facebook post can be found here and Dr Balwani's article can be accessed by clicking here!