In a recent Facebook post, Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience in getting a diagnosis. In reference to an article written by Porphyria Expert, Dr. Manisha Balwani, 22% of people living with EPP will visit more than ten doctors before receiving a diagnosis. The cause of this delay? Lack of awareness among the medical community. Though much progress has been made in the years, there is still a ways to go. Clinuvel recognizes this problem and is working to help raise awareness among the medical field.