EXCITING NEWS for EPP AND XLP FRIENDS

  • Wednesday, June 18, 2025

Disc Medicine is proud to announce our new campaign to raise awareness for Erythropoietic Protoporphyria including X-Linked Protoporphyria. The campaign was built specifically for people living with EPP and XLP and  their caregivers and is intended for US residents. It is here to help with

  • Explanations for Understanding EPP
  • Tips for managing symptoms
  • Resources to help build your care plan
  • Links to support networks and resources

In addition to the Patient and Caregiver site, Disc also launched an Health Care Professional (HCP) focused site offering dedicated resources to support clinical practice, including:

  • Disease education on EPP
  • Diagnosis and testing guidance
  • Information on long-term management

Disc Medicine is committed to deepening the understanding of these conditions, please visit the new sites and explore what’s available: