The APF is hosting a patient-only virtual networking forum for members with Acute Hepatic Porphyria who are using the treatment Givlaari.
The Givlaari Networking Forum zoom gathering will be an opportunity for patients to connect in an informal and comfortable group to discuss the treatment, share experiences and to give and get peer support.
Please share your interest in participating in the conversation - and we will connect with you for zoom timing details.
Email firstname.lastname@example.org for more information.
Where: Virtually via Zoom
Who: Patients only, please.