Have You Joined Our Facebook Groups?

  • Monday, November 4, 2019

Have you checked out the APF Facebook groups recently? Did you know APF has seven Facebook groups? We moderate one public group along with six private disease-specific groups that you can request to join. The communities are very active and it is a great way to connect with other porphyria patients and caregivers. In addition, the APF regularly posts publications, research, updates and other educational information As an ultra-rare condition it can seem like you are alone but YOU ARE NOT! ….come join us!

 

Below are the Official 7 APF Facebook Groups

 

Public Group

Porphyria - American Porphyria Foundation

Please Click Here for Link

 

Private Groups

APF: Porphyria - AIP, HCP, VP

Please Click Here For Link

 

APF: Porphyria - PCT

Please Click Here for Link

 

APF: Porphyria - EPP

Please Click Here for Link

 

APF: Porphria - CEP

Please Click Here for Link

 

Porphyria International Support & Education Group

Please Click Here for Link

 

Porphyria Research

Please Click Here for Link