Have you checked out the APF Facebook groups recently? Did you know APF has seven Facebook groups?
We moderate one public group along with six private, disease-specific groups that you can request to join. The communities are very active and it is a great way to connect with other porphyria patients and caregivers.
In addition, the APF regularly posts publications, research, updates and other educational information. YOU ARE NOT! ….come join us!
Official APF Facebook Groups