Have You Joined Our Facebook Groups?

  • Friday, September 25, 2020

Have you checked out the APF Facebook groups recently? Did you know APF has seven Facebook groups?

We moderate one public group along with six private, disease-specific groups that you can request to join. The communities are very active and it is a great way to connect with other porphyria patients and caregivers.

In addition, the APF regularly posts publications, research, updates and other educational information. YOU ARE NOT! ….come join us!

Official APF Facebook Groups

Public Group

Porphyria - American Porphyria Foundation


Private Groups

APF PORPHYRIA – Acute Porphyria (AIP, HCP, VP, ADP)

APF PORPHYRIA – Porphyria Cutanea Tarda (PCT)

APF PORPHYRIA – Erythropoietic Protoporphyria (EPP/XLP)

APF PORPHYRIA – Congenital Erythropoietic Porphryia (CEP)

Porphyria International Support & Education Group

APF PORPHYRIA – Porphyria Research