In-District Lobby Days (Rare Across America)

  • Thursday, May 9, 2019

Rare Disease Legislative Advocates is hosting In-District Lobby Days (Rare Across America) to facilitate meetings for rare disease advocates across the country with members of Congress in their local offices during the 2019 summer in-district work period (July 29th through Sept. 8th).

Meeting with your representative and senators throughout the year is critical to building key relationships. These meetings also provide an opportunity to discuss legislation that is meaningful to the rare disease community, and to highlight the importance of the Rare Disease Congressional Caucus. Make YOUR voice heard as you advocate on behalf of the rare disease community!

Registration for In-District Lobby Days is FREE and open through July 3rd. You will be provided the option to specify your availability and the distance you are willing to travel for a meeting with your member of congress.

The American Porphyria Foundation can help you with issues and talking points important to each type of porphyria. Contact us today by phone at 301.347.7166 or via email at