One more chance to participate!
Rare disease patients and caregivers: How are you being impacted by the novel coronavirus pandemic?
Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the NIH’s Rare Diseases Clinical Research Network. Your responses may help researchers understand the impacts of COVID-19 on the rare disease community. The survey closes December 15th!
Complete the survey or learn more at: