"Let's Talk About Pain"

  • Thursday, August 8, 2019

What do all the porphyrias have in common? PAIN.

September is Pain Awareness Month! This year the US Pain Foundation is celebrating with the theme "Let's Talk About Pain." Patients who suffer with chronic pain may feel ashamed or afraid to talk about their pain with others, but this is how we create change. The US Pain Foundation is asking patients to submit a 3-5 minute video sharing their pain journey. All videos are due by August 9th. 30 videos will be selected to be featured during Pain Awareness Month. LET'S MAKE PORPHYRIA ONE (OR MORE!) OF THEM! 

Submit your video story today (or by August 9) to receive a thank you gift and be entered to win a grand prize!

Directions to submit:

  1. https://uspainawarenessmonth.com/storyathon/
  2. Make sure to share your video with the APF too! Send to Edrin Williams on edrinw@porphyriafoundation.org

This is your chance to use YOUR porphyria warrior voice to create change! By sharing your story you can shine a light on pain and Porphyria so share your pain video today!