Meet with your Member of Congress this summer!

  • Thursday, June 6, 2019

While Congress is in recess from July 29- September 8, the Rare Disease Legislative Advocates (RDLA) is organizing meetings for rare disease advocates with their Members of Congress and/or the Member’s staff at their local offices.

No prior experience is necessary!! The RDLA team helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.

Click here to register today and use your voice to impact life for those dealing with porphyria! Reigstration is open from May 9-July 3.