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AIP Member Spotlight - Michael Boone
Read About Mike's Porphyria Story
Acute Intermittent Porphyria (AIP)
Acute Intermittent Porphyria (AIP) is characterized by deficiency of the enzyme hydroxymethylbilane synthase (HMBS), also known as porphobilinogen deaminase (PBGD). Additional factors such as endocrine influences (e.g. hormonal changes), the use of certain drugs, excess alcohol consumption, infections, and fasting or dietary changes are required to trigger the appearance of symptoms.
Click Here to Read More AIP Member Stories on AIP
Contact edrinw@porphyriafoundation.org to add your member story!
Make a Change
Add our custom made Facebook Frame and Banner to your profile in support of Porphyria Awareness Week! Encourage your family and friends to do so!
Instructions:
Next up for Tuesday, April 21
…..FOCUS ON CEP and ADP!
Coming Soon
Facebook Live with Dr. Bruce Wang - Save the date! Dr. Wang will be present during a FB live event on Wednesday, April 22 at 7:30 PM - EST. Please make sure that you are following the APF FB Page.
#AskMeAboutPorphyria encourages you to educate your local community and healthcare professionals through encouraging a conversation about Porphyria and the impact it has on you. One conversation can make a difference.
Have you had a good conversation about Porphyria? Share with us atedrinw@porphyriafoundation.org
Please Click Here to Access the APF Webpage for Awareness Week Logos and Materials
